Archive for the ‘Uncategorized’ Category

Watch out!

In Uncategorized on January 24, 2011 at 4:13 pm
Our new Building True Potential Campaign is coming!
The Wall of Acceptance – To ensure that everybody is well educated about epilepsy, which will reduce discrimination towards people with epilepsy and acceptance of people with epilepsy in all spheres of life.


December Newsletter 2010

In Uncategorized on December 10, 2010 at 7:15 am


Dear Readers

This is our last newsletter for 2010, and I want to thank each and every reader for their support during this year.
I know I often make this statement, but we truly cannot do what we do without support from people like you, who take an interest in our organisation, our services – you offer your support in so many ways, we cannot thank you enough!
In this edition, you will note that the National Office has launched an exciting new fundraising campaign. Due to the economic downturn every NPO has struggled to keep head above water and Epilepsy South Africa as a whole welcomes any support to help us sustain our service programmes.

You will also read more about the National Office SIYB TOT seminar and our training facilities, which truly are a huge asset.

From the Free State Branch, you can read about their reflection of the year gone past and the exciting initiatives at this Branch.

Mpumalanga once again held their Chef’s Cookout, which was a great success.

Gauteng Branch tells us more about their DSTV initiative, their Christmas card sales (please support them), the family day at their residential care centre and some of their economic development programmes.

At the South Cape Karoo Branch, residents completed their ABET course, an Epilepsy Alive revue celebrated the International Day of People with Disabilities and you will also read more about their outreach programmes.

An article is also included about volunteers with disabilities being used for the London Olympic Games.

For those celebrating Christmas, I wish a blessed Christmas season. I hope that all our readers and supporters will enjoy a peaceful, fun filled holiday season and that 2011 will be a prosperous and jubilant year for all!

Please note that our first edition for 2011 will only be circulated in February 2011.

With much appreciation

Noëline de Goede

BUILDING TRUE POTENTIAL Campaign for people with epilepsy

The National Office of Epilepsy South Africa is embarking on a strong drive to support South Africans with epilepsy and other disabilities. We will be looking for individuals and entities willing to affect change, motivate others and join us in turning obstacles into TRUE POTENTIAL!

The reality is that everyday obstacles are part of the life of people with epilepsy and other disabilities. Therefore, we have decided to make these obstacles our main target for the BUILDING TRUE POTENTIAL Campaign. The walls of self-doubt, stigma, discrimination, fear and rejection prevent people with epilepsy to reach their TRUE POTENTIAL, and we will break these walls down into small bricks that can be used to build new walls of support; walls of TRUE POTENTIAL.

We will continue to build these new walls higher and higher and we will rename them: Wall of Acceptance, Wall of Opportunities, Wall of Health and Wellbeing, Wall of Empowerment and Wall of Good Practice & Excellence.
The BUILDING TRUE POTENTIAL Campaign aims to eradicate stigma, fight for the rights of people with disabilities, guide our clients on their first steps to climb these new walls and overcome the obstacles of living with a disability. We will campaign towards a nation where everyone is accepted and given the opportunity for growth, regardless of his or her disability. We will strive to reach all people with epilepsy in South Africa in need of support and care and endeavour to empower them with skills and confidence in their own abilities so that they too can stand on the great walls of TRUE POTENTIAL.

We will need all the help we can find to achieve this goal. You can buy your bricks at a cost of R250 each. This will enable us to build our walls of TRUE POTENTIAL ensuring essential services to people with epilepsy and other disabilities. We need YOUR help as our loyal and supportive readers.
Please contact us at (021) 595-4900, or at fundraising.no@epilepsy.org.za, to find our how you can acquire your own “bricks” to help us build a better future for people with epilepsy. Choose the Wall of Potential that you wish to support, and see how your contribution makes a difference in the lives of South Africans. Let us take this Festive Season and open our hearts to those who are in need. Contact us now and join us in BUILDING TRUE POTENTIAL.


The National Office hosted an SIYB TOT seminar from 22 November to 1 December in Cape Town. The aim of the seminar was to develop trainers to deliver entrepreneurial development services. We have hosted a number of these seminars, but this was a remarkable seminar in that it provided individual attention at a level never seen before.
When six out of the 11 participants selected for the seminar withdrew three days before the start of training, it seemed like the seminar would have to be postponed. However, the remaining five participants would have none of it and we took the brave decision to turn a challenge into an opportunity. After all, the National Office believes in turning obstacles into true potential.

The seminar was attended by Sylvanus Ebenezer Venketsamy, Serole Matjabe, Brett Giddy, Lindie Brundyn and Neil Conrad. Sylvanus (KZN), Serole (based in Gauteng with branches in a number of provinces) and Brett (Eastern Cape) are business owners offering a variety of training, skills development and business consulting services. Lindie is the accountant at the National Office who will be offering financial training under the banner of our training division as from 2011. Neil is employed by a major entrepreneurial service provider in Cape Town.

We are excited by the quality of the programmes designed by the new SIYB trainers and look forward to implementation in their own areas of operation.


In addition to hosting a variety of training programmes, the National Office also has training/meeting facilities available which can be rented at very reasonable rates. The venue is available half or full day with a variety of catering options and training equipment available. For more information and to make a booking, contact Marina Clarke at the National Office on (021) 595-4900 or economicdev.no@epilepsy.org.za.


No rain, no complaints, no mystery ingredients, no wet kitchen could dampen the enthusiasm of participants in this year’s Chef Cook out.

The quality of the dishes prepared by the 10 chefs were excellent and the spirit amongst them even better! The cabaret show by Elsabé Zietsman & Janine contributed to the evening’s success.

The judges, Elsabé Zietsman and Christine Hamman had a fantastic time judging the dishes and a hard time deciding on the best team for each category. They eventually capped Walkersons as the overall winner! Congratulations to Adri and Jackpot on a superb performance.
The Protea Boulevard Hotel in Witbank joined the chefs of Dullstroom in their very first Chef’s Cookout and we say welcome and well done! A huge thank you to Maryann and Tonya for taking part as an independent team.

Winners in the various categories were:

Best main meal: Canimambo

Best Starter: Walkerson

Best Dessert: The Poacher

Best table: Critchley Hackle

Best dressed chef: To – Ann / Independents

Best innovative cheat: Pickles & Things

Most creative presentation: Walkersons

Most innovative use of the surprise ingredient (Jungle Oats): Pickles & Things

Best skivvy: Plat du Jour

Drunkest chef: Protea Boulevard Witbank – Ulrich

Most sober chef: Dunkeld – Japie

Most organised kitchen: Walkersons

Most unorganised kitchen: Mrs Simpsons

Epilepsy South Africa would like to thank all the chefs who participated in this event and the community in Dullstroom for your support as well as all the business owners who generously sponsored the prizes and food for the event.



Residents, day visitors and one staff member participated in the ABET programme this year with five of the candidates sitting for their Level 4 examinations during November. The Knysna Community Learning Centre was very excited about their participation as this was the first group of persons with disabilities to ever sit for the ABET exams in Knysna.

Epilepsy Alive Revue

November was an extremely busy time as we rehearsed for the “Epilepsy Alive Revue” starring clients as well as staff of the South Cape/Karoo Branch at the local primary school hall. The event was held on the eve of the International Day for Persons with Disabilities (IDPD) – a fun occasion to emphasize the abilities and strengths of people with disabilities.
Promotion of access to health care 2011

Dr Portgieter’s first visit to the region in 2011 will take place from 28 February to 11 March.

We are currently trying to source funding to extend this program into the Langkloof and Great Karoo areas of Uniondale and Prince Albert – Klaarstroom.

Mathillda Esterhuizen speaks about our services

Mathilda Esterhuizen (here with husband Freek) was born in Beaufort and experienced epileptic seizures from the age of 12. These increased and, since her 16th year she experienced seizures virtually daily.

They moved to Oudtshoorn and in 2007 she met Dr Potgieter from Cape Town who visits the South Cape/Karoo area twice annually. He monitors the medication of people experiencing problems with their seizures. Since his intervention Mathilda’s seizures are so well controlled that she stated: “My whole life changed. I am not scared or anxious any more and can even go to town and to the bank on my own. I am ever so grateful.”

Tanya Snyders values our services

Tanya Snyders from Beaufort West is multiply disabled due to a prolonged birth process. Both her parents passed away earlier this year (February and April respectively). Tanya has two brothers and two sisters and was placed in the care of her 21-year old sister, Beverly Snyders.

Tanya was seen by Dr Potgieter who is currently adjusting her medication. She has already improved a great deal.

Support groups

Thanks to funds received from the National Lottery Distribution Trust Fund (NLDTF) we were able to appoint a community worker to deliver services to people with disabilities in areas lacking sufficient services. Members of the Sunshine Group in Buffelsnek voiced their opinions:

Sarie Olifant (Veldmanspad)

“Epilepsy South Africa means a lot to me because I receive help in all matters. I never used medication to control my seizures, nor did I have an identity document. Mrs Louw wrote to Dr Potgieter which enable me to see the doctor who diagnosed my condition and prescribed the necessary medication. Epilepsy South Africa collected me from home for this appointment as I did not have any transport.

I also told Mrs louw that I had no food in my home. She returned to Epilepsy SA and brought me a large hamper, as well as regular food parcels thereafter. I also did not know how to apply for an identify document. Epilepsy South Africa walked the road with me every step of the way until I received my ID. The Department of Home Affairs delivered my ID personally at Epilepsy South Africa due to a misunderstanding.

I now belong to the Buffelsnek Sunshine Group and appreciate that Epilepsy SA created such a group. I learn a lot every Wednesday. We dance here and forget about our problems. Things become more serious when we learn a variety of skills like making aprons, bags for washing pegs, etc.
Epilepsy South Africa really made a difference in my life.”

Christine Watsonof (Veldmanspad)

“Epilepsy SA helped me to start using medication. I heard in Diepwalle that Epilepsy SA delivered services and asked people there to send me to them. Since then I have joined the Epilepsy SA group in Buffelsnek. I am collected at home every Wednesday and transported to Buffelsnek. We are served sandwiches and other food. It helps me a lot and I also learn a lot. It is good to be part of the Epilepsy SA group.”

If names like Veldmanspad, Buffelsnek and Diepwalle sound familiar, it is probably because you read about these places in Dalena Matthee’s book Fiela’s Child. These are forestry stations along the way Fiela walks in the story. People who live there are largely cut off and live in an isolated world. Epilepsy SA started working in the area due to the limited community development services available. We do not limit our services to people with disabilities, but also draw in able-bodied people.

Wonderful friends

Desiree Barnard of the Human Development Department at the Overstrand Municipality in Hermanus has been a loyal friend to Epilepsy SA in Knysna and assists with the sale of Casual Day stickers every year. This year she sold stickers to the value of R2,000.



As you are aware, Epilepsy South Africa has partnered with DSTV to explore epilepsy in an in-depth manner. In our last newsletter we requested suggestions of aspects of epilepsy that you would like to have more information on. Please send your suggestions to Sharm Knobel at pro.gp@epilepsy.org.za. Without your help, we will not be able tokeep this slot for much longer. We look forward to getting exciting suggestions from you.

Christmas Cards

Now is your chance to buy beautiful cards with an African theme to send to family and friends this Christmas. The kiosks selling these cards will be open six days a week (Monday to Saturday) until 17 December. They are situated in Sandton City, Killarney Mall, Bryanston Shopping Centre and Heathway Shopping Centre. The cards are in packs of five and include envelopes and sell at a cost of R18 per pack. The cards are also available from the Gauteng Branch. Please call (011) 816-2040 to place your order. Go on – Do your good deed for the day!

Daggafontein Centre celebrates Family Day

There was lots of fun, laughter, joy and excitement on 30 October at the Daggafontein Centre (a residential centre of the Gauteng Branch). This day helped to restore and sustain healthy and stable relationships between the residents and their families.

Various activities ensured that everybody participated fully and enjoyed the day. Staff members engaged families and residents in sporting activities. The Rotary Anns of Springs sourced donations of trees from PJ Nursery and arranged a tree planting ceremony. Premier Foods baked cakes and entertained everyone with music. Meat Mecca, Jansa (Pty) Ltd, Mikes Kitchen, Chipkins Catering and Flower Line, among others, donated prizes for the raffle, which raised R17,605. The families were fantastic in their support of this event.

New hydroponics tunnel for Geduld Centre

The DG Murray Trust generously sponsored a hydroponics tunnel which has been built at the Geduld Centre in Springs. This will enable the project, together with the existing tunnel, to increase vegetable production. Epilepsy South Africa is very grateful to the DG Murray Trust as they have assisted us to take a step towards sustainability, which is a long term goal.

Kathorus Epilepsy Self Help Organisation

This self help organization was started in 2004 by a very courageous, determined lady – Nomvula Letsatsi. She is married with children, but still made the time to help other people. There are 10 persons with epilepsy and other disabilities working in this project. In times where business is slow, Nomvula and her group persevere because they know that the work they produce is of a very high quality. They produce beaded items such as men’s and women’s neckties, coffee mugs, jewellery, goblets, vases, traditional beer pots, cellular phone and pen holders, key rings, dress collars, belts, artwork and frames. They also weave floor mats, wall hangings and place mats for tables.

Their work is unique, versatile and creative. Items are custom made according to the requirements of customers. What could be better than a custom made gift for your loved ones or a gift with your company logo as a corporate gift. In ordering these handcrafted items as gifts you will also be supporting a good cause. To obtain more information and place an order contact Nomvula at 072 653 2459.


If you are disabled and seeking employment, send your CV to Melissa at consultant@bradshawleroux.co.za, Liz Murray at lizm@crs.co.za or Sharm Pillay at sharm@resourceagency.co.za. They specialize in placing disabled people in various positions throughout South Africa.

You can also register your CV and look for employment, as well as for advertisements on training/learnerships and internships suitable for people with disabilities on http://www.jobaccess.co.za (a website exclusive to people with disabilities) or http://www.ibility.org.za (an initiative of the Services SETA).


Year end

2010 is almost over and for our Branch, this was a special year characterised by hard work and effort from supporters and staff alike. Support came from young and old as illustrated by the hard work of high school learners to purchase new linen for our residents. Thank you to every person that assisted us throughout the year. Please have a good rest during the holiday times and for those that are keeping the wheels turning, our thoughts are with you and thank you for keeping the pace up.

During November our branch had much to do giving back to the community. The office in Tumahole, in conjunction with the HIV/AIDS support group (Ratanang) and Discovery planted 50 trees in Tumahole. May these trees grow big and very old to provide air to generations to come and provide shade when it is hot.

The year is not over yet and there are many things to do in the limited time remaining. We look forward to the International Horse Championships. The residents of the Residential Care Centre in Parys unable to return home for the December holidays will participate in a full programme of fun activities to make their stay during this time as pleasant as possible.

Our wish for everyone is for hope, love, health and wisdom. May these wishes go with you wherever you may go during the Festive Time and 2011.


London Olympic Games 2012

Six thousand persons with disabilities have volunteered to assist with the 2012 London Olympic Games, representing a significant change in attitudes as well as the rising profile of the Paralympics. Games organizers had especially encouraged the participation of volunteers with disabilities, to ensure the London Olympic Games represented diversity and inclusion. More information can be found by visiting http://ablemagazine.co.uk/six-thousand-disabled-people-volunteer-for-london-2012/.


The Conference, focusing on disability inclusion, equality and diversity will take place in Honolulu, Hawaii on 18 and 19 April 2011. The theme will be “Humanity: Advancing Inclusion, Equality and Diversity”. Organisers anticipate the attendance of more than a thousand participants at the Conference which will feature 15 topics and 30 keynote speakers.

This event is hosted by the Center on Disability Studies (CDS), a University of Hawaii Board of Regents recognized center of programs focused on the development and conduct of interdisciplinary education/training, research/demonstration and evaluation, through university and community services.
For more information contact Genesis Leong by e-mailing to prinfo@hawaii.edu or visit http://www.pacrim.hawaii.edu.

November Newsletter 2010

In Uncategorized on December 1, 2010 at 9:03 am


Dear Readers

October brought a hive of activity focused on our 4th National Wine Auction held on 28 October 2010 at the Westin Grand Hotel, in the heart of Cape Town. Guests were welcomed to a complementary wine tasting prior to the actual auction, accompanied by the soothing jazz of Urban Groove. Master of ceremonies, Paul Buckby, got the evening into full swing before Auction Alliance master, Ish Hendricks, auctioned 55 lots – including wine, art and sporting memorabilia. Sterling EQ added a touch of glamour with their smooth sounds while Jonty Rhodes (an old friend of Epilepsy South Africa), Cindy Nell-Roberts and Dr Divan Serfontein added a special sparkle. Read more about this exciting event below.

As though it is not enough to organise an event of this magnitude, the National Office also completed the re-modelling of the new venue for our training division. Find out more about this development below.

Xolisa Nkonyeni offers advice on taking control of your own life in addition to free life coaching services to people with epilepsy in the Eastern Cape.

This newsletter also offers you the opportunity to catch up on all the exciting developments and happenings at the Epilepsy South Africa Branches. The Mpumalanga & Limpopo Branch reports on their sports day, service plans and a sad farewell to one of their residents, Gideon Kilian, while looking forward to the annual Chef’s Cookout in November 2010. The Western Cape Branch opened new community counselling satellite offices around the Peninsula and participated in research on disability and human rights. Members of the Parys community, including the local Mica outlet, assisted the Free State & North West Branch to upgrade the sickbay.

You can contribute to the debate about epilepsy by suggesting topics for the DSTV series or support the organisation by buying beautiful Christmas cards. In addition, people with epilepsy and other disabilities are assisted in finding employment through a variety of service points.

If you wish to become more involved with our organisation, please contact your closest Epilepsy SA Branch by phoning 0860 EPILEPSY (0860 374537).


Noëline de Goede


The 4th Annual Wine Auction of Epilepsy South Africa proved to be another great success for the National Office! The event, held on Thursday, the 28th of October 2010, raised almost R70,000 from lots and selected raffle items. Cipla Medpro stepped in as main sponsor for this year’s event at the luxurious Westin Grand Ballroom in Cape Town. Familiar faces, like Jonty Rhodes, Cindy Nell and Dr Divan Serfontein (Cipla Medpro), joined guests in bidding for exclusive wine lots, art and sports memorabilia. Paul Buckby led the proceedings as master of ceremonies and added his own unique musical contribution. Sounds of Jazz trio, Urban Groove accompanied the wine tasting offered by 13 wine estates and distributors. In addition, the classical allure of renowned Sterling EQ produced an evening with a memorable, lingering aftertaste that will be hard to surpass at next year’s 5th Annual Wine Auction!

Epilepsy South Africa National Office thanks Cipla Medpro for the enormous role they played in making this year’s wine auction such a raving success. A special word of thanks also goes to major supporters, especially Auction Alliance, for felling the hammer for four consecutive wine auctions; Tomcat Advertising Agency, for more than just design and printing; and Slaley Wines, who sponsored the entire range of table wine for the event. We would also like to extend our heartfelt thanks to other sponsors, especially the wine estates for their contributions of wine lots and tasting displays, prize sponsors with particular mention of the Taj Cape Town, Van Deijl Jewellers Tygervalley, Cindy Nell for her gifts from Cosmetix, Shoprite Checkers for the delectable cheese and biscuits, Chris Cloete Photography for the photographs of the evening, Homebrew Films for their support and filming of the event and everyone else who supported this major fundraising event. We are immensely grateful for your generous support and we’d like to invite you to join us again for the 2011 entry on the Cape Town social calendar.


October saw the realisation of a long-held and cherished dream of the National Office – the opening of our very own training division. When we moved to Parow during February 2010, we immediately saw the potential of our new home to host the training division. While the new division was officially launched in August 2010, we still did not have a home of our own. We were content using the National Office Boardroom as an interim measure, but during October, a section of our office building was re-designed and re-modelled as a training room! Dust went flying in all directions while we ripped out dry-walling, re-tiled and repainted. Melanie Lubbe found a contractor willing to provide services free of charge and the work began. What was previously a collection of small offices took shape as a training/meeting room with additional storage space and even a small catering area, identified for the serving of tea/coffee and meals. On 26 October 2010, we hosted a meeting of the South African Disability Alliance (SADA) as our venue can comfortably accommodate people with disabilities, including wheelchair users. The next big event will be the Start and Improve Your Business (SIYB) Training of Trainers seminar to be held from 21 November to 3 December 2010. This venue will not only function as a home to the training activities of the National Office, but also be rented out to others. For more information on costs and how to book the venue, please contact Marina Clarke on (021) 595-4900 or economicdev.no@epilepsy.org.za.


This has been my standard excuse since I started having epileptic seizures in High school. A close friend of mine once laughingly asked me: “What happened to us? We were so ambitious when we were younger; we were going to serve the UN!! We were going places, you and I…” Of course my standard answer was, as above. This still did not register when my younger sister asked the same question albeit differently: “What happened? You were the one who was going to be successful, you were the one who was going to get married and be a great mother. What happened?” Of course my answer was pathetically self pitying and rather self righteous: “But, you know I fell ill…” Epilepsy is a lot of things but it is not some disease or curse that one cannot live with. This I discovered only a year ago when I started to take responsibility of my own life. This knowledge has led me to studying Life Coaching, where clients are assisted to set goals and from their life coach get feedback, insights from a totally impartial point of view. This is an on-going partnership and unlike counselling where the root of the problem is investigated, life coaching is built on taking action, based on current conditions.

With some life coaching, I have discovered that I can do anything an able-bodied person can – in some cases even more. I have also learnt that by taking responsibility of my own life, I put the power back in my own hands. There are six “rules” to life I try to follow which have helped tremendously:

Take responsibility for your life at all times. This is not the same as self-blame, which implies that you cannot change the situation, regardless of the circumstances. Taking responsibility for any situation – results are determined by your response. By controlling your response to any situation, you now control the outcome in your life, thereby enabling you to change the situation (if the response was not favourable) or maintain the action (if it produced good results).

Be constantly aware of things that make you happy. By constantly revisiting and accentuating the positives – the negatives become a pesky sideline rather than your focus.

Do not define success by other people’s standards. Success to you may not necessarily have financial implications, but it could be services rendered in a certain manner to others. You are then able to set your own goals. It might be to gain some form of self-actualisation. Once you are able to identify your success using goals to achieve it, it becomes easier to attain.

Be confident at all times, because the Universe reverberates in your life what you shout out. If you portray self confidence, the feedback you receive from your external world is reflective of that and this further builds confidence for you to venture where you would not normally go, where you would otherwise believe you cannot go. This leads to the next point.

Do not be afraid to try something new. Go for something artsy, gutsy or fun. This helps to give you variety in life and constantly reinforces that you actually can.

Find your purpose in life. Purpose is self-evolving. By living your life the way that best builds you and others, you slowly discover your purpose in life. Through this, self-actualisation can then be attained. With life coaching, it is easier to attain self-fulfilment and I would like to offer 15 individuals (in and around the Queenstown/East London area) an hour’s session of my coaching services to help determine their goals. This will be free of charge! All I ask in return is that they complete and sign a feedback form. This acknowledgement will help me attain my qualification in Life Coaching.

Please contact: Xolisa Nkonyeni on (045) 838-4274 during office hours or 074 218 1176, or e-mail xolnkonyeni@vodamail.co.za. To learn more about Life Coaching, please visit the New Insights Africa website.

Epilepsy South Africa Wine Auction brings it to the table

In Uncategorized on November 3, 2010 at 10:02 am

The 4th Annual Wine Auction of Epilepsy South Africa proved to be another great success on Thursday, the 28th of October 2010, raising almost R70,000 from lots and selected raffle items. Cipla Medpro stepped in as main sponsor for this year’s event that took place at the luxurious Westin Grand Ballroom in Cape Town.

Familiar faces Jonty Rhodes, Cindy Nell, Paul Buckby (MC) and Dr Divan Serfontein (Cipla Medpro) joined guests in bidding for exclusive and unique wine lots, art and sports memorabilia. The wines that were up for auction included vintages from as far back as 1971, with impressive collector’s sets of Alto estate wines selling for R900 per bottle, Ernie Els at R1,100 per bottle, framed cricket shirts signed by legendary Jonty reached up to R3,000 per frame and an interesting set of the popular Amarula Liqueur selling for an amazing R2,700. Just imagine the excitement that stirred in the audience as these gems were offered!

The sounds of Jazz Trio, Urban Groove, as well as the classical allure of renowned Sterling EQ, produced an evening with a memorable, lingering aftertaste that will be hard to surpass next year at the 5th Annual Wine Auction!

Cipla Medpro and Epilepsy South Africa National Office thank everyone who supported this fundraising event and would like to invite you to join them for the 2011 version of this significant entry on the Cape Town social calendar.

October Newsletter 2010

In Uncategorized on October 22, 2010 at 7:07 am
October 2010


Dear Readers

I hope that all of you enjoyed a blessed Heritage Day on 24 September 2010, celebrating the strength of our country, its people and what we have achieved.

In this month’s newsletter, you continue to celebrate people with epilepsy and other disabilities with us. You will note the success of Casual Day and you will read about how terrific some of our residential care clients fared at the Special Olympics. We are very proud of them!

We also share information about some of our programmes and fundraising initiatives and hope that you will join us at these events and become involved in our service delivery. We dearly need your support to turn obstacles into true potential for people with epilepsy, especially fighting to eradicate the discrimination that people with epilepsy still experience.

I want to say thank you to the respective Branch and National Office Board members that were elected at our recent AGM’s, as you provide your time and expertise to us free of charge to assist us in reaching our vision as an organisation.

If you wish to become more involved with our organisation, please contact your closest Epilepsy SA Branch by phoning 0860 EPILEPSY (0860 374537).


Noëline de Goede



The National Office hosted its Annual General Meeting on 11 September 2010. Following elections, the National Board for the 2011 year was thus constituted as follows:

National Steering Committee:
Mr Potso Mohajane (National Chairperson)
Mr Tim de Villiers (National Vice-Chairperson)
Mr Joseph Stoltz (National Treasurer)
Mr Solomon P Mokgata
Mr Christo Loots
Ms Kanyisa Ncemane
Dr Phindile Mnguni
Mr Michael Bagraim (advisory member)

Branch representatives:
South Cape/Karoo Branch: Mrs Sue Viljoen
Free State & North West Branch: Mr Sello Mofokeng
Mpumalanga & Limpopo Branch: Mrs Christene Muamba
Gauteng Branch: Mrs Roweena Stewart
Western Cape Branch: Prof Roland Eastman
KZN Midlands Branch: To be advised

National Office: Mrs Noëline de Goede (National Director),
Ms Marina Clarke (Deputy National Director) and Mrs Karen Robinson (National Social Development Manager)
South Cape/Karoo Branch: Mrs Vivien Paremoer (Branch Director)
Free State & North West Branch: Mr Gary Westwood (Branch Director)
Mpumalanga & Limpopo Branch: Mrs Mariana Holtzhausen (Branch Director)
Gauteng Branch: Ms Magdaleen Kruger (Branch Director)
Western Cape Branch: Ms Wendy Nefdt (Branch Director)
KZN Midlands Branch: To be advised

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NATIONAL OFFICE NEWS – 4th annual Wine Auction

NATIONAL OFFICE NEWS - 4th annual Wine AuctionThere’s only two weeks left before the Cipla Epilepsy South Africa Annual National Wine Auction on 28 October 2010. The Wine Auction has grown in stature every year and the 2010 auction promises to top it all! We are back this year in the luxurious Westin Grand Hotel in Cape Town and we know that with their five star cuisine, top wines of South Africa and fantastic entertainment, this will surely be a night to remember. If you have not yet purchased your ticket, now’s the time! Do not miss out on this year’s planned highlights, please read below:

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4th Annual Wine Auction – Master of Ceremonies

4th Annual Wine Auction - Master of Ceremonies Mr Paul Buckby , is a celebrated SA television actor, singer, television presenter and auctioneer best known for his role as Dr Adam Fischer on the M-Net soap opera Egoli: Place of Gold. He has appeared in a number of television shows, ranging from TV presenting to acting and was the master of Ceremonies at two Miss South Africa pageants. Paul is also an accomplished vocalist and will treat us to some of his charming melodies.

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4th Annual Wine Auction – Entertainment

4th Annual Wine Auction - EntertainmentEntertainment will be a feast to the ears as we enjoy the smooth jazz sounds and a range of enjoyable popular background music by Urban Groove during arrival and wine tasting, while Sterling EQ will dazzle us with their genre-defying musical style and sensational live performance.

 Sterling EQ has proved to be one of the most successful instrumental bands ever to come out of South Africa and have performed on the stages of coveted events such as the South African Music Awards (SAMA’s), the opening of the Cape Town stadium, the FIFA Final Draw party in Long Street, and IPL Cricket Tournament opening. They’ve shared stages with icons such as Boney M, Snow Patrol, Johnny Clegg, The Parlotones and Soweto Gospel Choir, and have entertained local and international celebrities to the likes of Elton John, Annie Lennox, and Lance Armstrong, to name but a few. Can’t wait to see them!

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4th Annual Wine Auction – Bidding

4th Annual Wine Auction - BiddingAuction! Auction! Auction! If you’re a serious bidder, you’ll be enticed by the special and unique lots available this year. (I will tease you with a picture or two…) If you’re not a serious bidder, you’ll have fun with the interesting and fun lots available. Bid against the likes of Cindy Nell, Dr Divan Serfontein, Jonty Rhodes as well as other familiar faces and stand the chance to win some serious prizes!

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4th Annual Wine Auction – Contact Us

The Cipla Epilepsy South Africa National Wine Auction is one of those events that you just cannot afford to miss! Please check for availability of seats with Wynand du Toit at Epilepsy South Africa National Office at 021 595 4900 or fundraising.no@epilepsy.org.za and join us for a night to remember.

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NATIONAL OFFICE NEWS – Entrepreneurial training



Epilepsy South Africa uses the Start and Improve Your Business Programme, developed by the International Labour Organisation (ILO). The Training of Trainers seminar will equip persons working in fields of development, job creation and poverty alleviation to assist people to start up their own businesses. The course not only deals with business management, but also offers an opportunity for the acquisition and development of training and facilitation skills.


The seminar will be hosted by Epilepsy South Africa at its National Office in Cape Town from 21 November to 3 December 2010. A maximum of 12 candidates can be accommodated.


This is a two week training programme which starts on the afternoon of Sunday, 21 November 2010 and ends on Friday, 3 December 2010. It is an intensive programme with four sessions daily:

• Early morning session: 08h00 – 10h00

• Late morning session: 10h30 – 12h30

• Early afternoon session: 13h30 – 15h30

• Late afternoon session: 15h45 – 17h30

Two sessions will also be held on the morning of Saturday, 27 November 2010. However, Saturday afternoon and Sunday is free time for participants.


• Participants will be introduced to the SIYB Programme and materials through two interactive sessions (4 hours).

• A business game is used to identify business problems and to give participants a taste of what it means to be an entrepreneur, the
problems faced by entrepreneurs and how they deal with them. It is a fun way of learning and participants are given the opportunity to
bring their own skills and knowledge into the learning process. Participants also acquire skills in the facilitation of the game.

• The timetable follows the SIYB training cycle with particular attention being paid to:

o Marketing the SIYB Programme.

o Selection and grouping of participants using Training Needs Analysis (TNA) tools.

o SIYB training methods, visual support and energizers.

o Preparation and design of training seminars.

o SIYB methodologies (adult learning).

o Effective presentation techniques.

o Preparation of training sessions.

o Follow-up methods.

o Evaluation of business plans.

o Monitoring and evaluation.

o SIYB tools for trainers.

• The seminar also introduces participants to concepts such as gender mainstreaming in enterprise development, managing HIV/AIDS
in the workplace, counseling techniques and action planning.

• Participants are skilled in assisting entrepreneurs to:

o Identify, analyse and select viable business ideas.

o Discover the basics of business and how to assist potential entrepreneurs in the establishment of their own businesses.

o Improve the management of their enterprises through the application of effective business management skills such as buying, stock control,
marketing, costing, record-keeping, business planning and productivity.

• In addition, participants are introduced to the Vuk’Uzenzele Entrepreneurial Development Programme – an audio-visual programme ideally
suited to potential and existing entrepreneurs with low literacy levels.

• As the SIYB Programme is a participatory and interactive programme, participants will be provided with opportunities for practical work,
including presentations.


To access this programme, please contact:

Marina Clarke, Deputy National Director, EPILEPSY SOUTH AFRICA,
P O Box 12100, N1 City, 7463.

Telephone: 021 595 4900, Fax: 021 595 4901
E-mail: economicdev.no@epilepsy.org.za

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Learn about epilepsy with fun!! On 29 November 2010, Epilepsy SA Free State and North West Branch is hosting an Epilepsy Treasure Hunt on the Vaal de Grace Golf and Country Estate. Entrance is R200 per team of two. You will enjoy exciting adventures such as riding your bike in the great outdoors, river rafting, and looking for answers on questions about epilepsy! Wonderful prizes can be won and the day will be concluded with a picnic on the island in the middle of the Vaal River. For more information, contact Tertius Meyer on (056) 811-5959 during office hours. We hope to see you there!

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As you are aware, Epilepsy South Africa has partnered with DSTV to explore epilepsy in an in-depth manner. We have now been given an unlimited number of interviews (at no cost) which will be aired on Channel 114, during the morning Breakfast Show “Good Morning Africa” from 07H00 to 07H45 and repeated on the same afternoons from 12H30 to 13H15.

We have covered a number of facets of epilepsy so far, but need suggestions for topics that you would like to watch. This is a golden opportunity that we have been offered and we have been very lucky to have captured the interest of DSTV viewers, who have been contacting the CEO with very positive comments. Most people view the subject of epilepsy as not very interesting, so we have to make the most of this opportunity to raise awareness and educate them. Please assist by sending your suggestions for topics to Sharm Knobel at HYPERLINK “mailto:pro.gp@epilepsy.org.za”pro.gp@epilepsy.org.za. I look forward to being inundated with suggestions!

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GAUTENG – ACSA Disability Conference & Expo

GAUTENG - ACSA Disability Conference & Expo  The annual ACSA Disability Conference and Expo took place on the 16th and 17th September 2010 in Midrand. Epilepsy South Africa (as a member of the South African Disability Alliance) participated in both events and hosted an information stand.

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GAUTENG – Luiperdskloof Youth Camp: 17 – 19 September 2010

The Gauteng Branch of Epilepsy South Africa hosted a youth camp at the beautiful Game Lodge nestled in Bronkhorstspruit in Mpumalanga. There were 22 participants from three different schools on the East Rand (Dr WK du Plessis, Matshediso and Phelang). These schools cater for learners with special educational needs and those living with epilepsy.

The ages of participants ranged from 14 to 18 years with the exception of two support group members from the community. The objective of the camp was ”to equip learners with rights based information on epilepsy to be advocates and ambassadors of Epilepsy South Africa”.

The youth camp involved a variety of activities, including a morning walk, a musical chairs game, a talent show and a series of workshops on epilepsy as a condition and the management thereof, as well as advocacy and human rights, sexuality and HIV/AIDS. The participants watched a DVD entitled “Yesterday” dealing with HIV/AIDS and other socio-economic and cultural issues.

The morning walk created an opportunity for participants to interact and get to know one another better. During the workshop, participants were able to understand that epilepsy is a condition and not a disease. Participants also learnt that epilepsy is not a barrier to keep them from achieving their goals in life. This helped them to understand their condition better and enabled them to articulate how it affected them. There were role plays to demonstrate how to conduct first aid when a person experiences a seizure while case studies stimulated discussions on how participants should think about their rights .Participants undertook to learn more about their rights as children living with epilepsy and other disabilities.

At the conclusion of the camp, participants wrote messages of hope for people living with epilepsy. One of the encouraging messages read: “My dream is to help other people living with epilepsy and other disabilities.”

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GAUTENG – Research

Would you like to make a difference by improving awareness and promoting understanding of the work-related needs of women with epilepsy? Your participation, as a volunteer in a research study, being conducted by Iodien Rensburg as part of his Master in Business Administration degree qualification, will contribute to improving the lot of women with epilepsy in the workplace. You will be required to describe your experiences of living with epilepsy in the workplace during an interview which will last for 45 to 60 minutes. The information will be used anonymously in the dissertation. Should you be interested in participating, please contact Mr. Iodien Rensburg at 082 733 3773.

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GAUTENG – Employment

If you are disabled and seeking employment, send your CV to Melissa at consultant@bradshawleroux.co.za, Liz Murray at lizm@crs.co.za or Sharm Pillay at sharm@resourceagency.co.za. They specialize in placing disabled people in various positions throughout South Africa. You can also register your CV and look for employment, as well as for advertisements on training/learnerships and internships suitable for people with disabilities on www.jobaccess.co.za (a website exclusive to people with disabilities) or www.ibility.org.za (an initiative of the Services SETA).

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MPUMALANGA & LIMPOPO - Casual DayThis year’s Casual Day theme was “Dress for laughs”. Here in Mpumalanga, we decided to have a fancy dress competition for our residents. Our offices were buzzing with all the excitement of making costumes and thanks to Liesel, Anel and Elsa that put in a lot of effort, all our residents had something to wear on 3 September 2010. Our winners, JF Thulani and Mara, each won a cash prize and thanks to Dullstroom Clock shop, all our residents received a lovely bedside table clock to thank them for their efforts. The day ended with a braai for our residents.

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MPUMALANGA & LIMPOPO – Special Olympics

MPUMALANGA & LIMPOPO - Special Olympics On 7 September, six of our residents joined the Special Olympics in Stellenbosch. The results were as follows:

  • Adrian Hawes: 800 m – fourth place ribbon, 400 m – third place bronze medal.
  • Christiaan Baartman: 800 m – fourth place ribbon, 400 m – second place silver medal.
  • Aaron Mnguni: 200 m – third place bronze medal, 100 m – seventh place.
  • Paul Simon: 200 m – third place bronze medal, 100 m – second place silver medal.
  • Lizelle Wahlstrand: 200 meters – third place bronze medal, 100 meters – seventh place

We are very proud of our residents who took part in this event and we are excited about being involved with the Special Olympics.

Towards the end of August, we were approached by the Special Olympics committee of Mpumalanga to host a sports day in honour of Eunice Kennedy Shriver, the founder of the Special Olympics. We had this event on 22 September on our sports grounds. Platorand, Mpilonhle Primary, Hambanathi and Dasha School took part in this event with us. We had Mr August Matlala and Phillip and Jimmy from the Special Olympics committee, helping us to apply all the rules and regulations correctly. Dullstroom residential care centre did the catering for 230 people on the day. We had a great day and all the athletes enjoyed taking part in the events – we had bocce, basketball, table tennis, floor hockey and soccer. We were fortunate to have our local police station supporting the event and Constable Sithole handed out the medals.

 “Let me win. But if I cannot win let me be brave in the attempt” The motto of the Special Olympics – A motto that all of us present made our own on this special day.

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MPUMALANGA & LIMPOPO – Our new Branch Board

Our newly elected board members met on 18 September 2010 for the first time this year. We are looking forward to a productive period together with the new board.

Please contact Riette or Elsa at the fundraising and marketing office with any queries on 013 2540161.

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SOUTH CAPE/KAROO – Access to better healthcare for persons with epilepsy

Anton Potgieter, our volunteer doctor from Cape Town, visited the South Cape/Karoo region to monitor the medication of persons with epilepsy. He consulted with 340 patients, covering the area from Albertinia to The Crags and the Karoo towns of Oudtshoorn, Ladismith, Zoar, Dysselsdorp and De Rust. Due to financial constraints, he did not visit Beaufort-West and Murraysburg this time, but 24 patients from these towns were transported by ambulance to attend the Dysselsdorp clinic.

Dr Potgieter has declared himself willing to assist anyone who encounters problems with their epilepsy and is available during office hours (08h00 – 16h00) on (021) 919-1259. Our clients report excellent results with seizure control thanks to Dr Potgieter’s interventions.

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SOUTH CAPE/KAROO – Fundraising in partnership with the Knysna Apostolic Faith Mission (AFM)

We are looking forward to the weekend of 15 and 16 October 2010. The local AFM church is organising a number of events for this weekend on the Knysna High School sportsfields. A 24-hour cycling event is due to take place and throughout the day there will be stalls selling delicious snacks and other items to entertain visitors. Concurrently with this, enriching lectures aimed at strengthening the spiritual life of families will take place. Residents of the Epilepsy SA Centre will assist as marshalls at the cycling endurance event. All funds raised will be shared between the church and Epilepsy SA.

The support received from the Knysna community in the face of our current financial crisis is really heart-warming.

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SOUTH CAPE/KAROO – Casual Day 2010

Casual Day 2010 was a huge success for us and was concluded with a street parade through the Main street of Knysna. After the street parade the local SAPS entertained our Centre residents and Day Visitors to a show by the police dogs in their narcotics division. This was followed by a braai – a great way to end our fundraising campaign, which was well supported by the community and the families of Centre residents. Many thanks to all concerned. The national Casual Day organisers will visit us on 4 October – watch out for us in the next Casual Day News newsletter.

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WESTERN CAPE - Casual DayEpilepsy South Africa Western Cape Branch hosted a successful Casual Day on 3 September 2010 at Metropolitan in Bellville. There was a lot of activity, selling of stickers and promoting awareness around people living with disabilities. We’d like to extend a special thanks to all our participants, particularly to the Department of Education, who co-ordinated the distribution of stickers to schools in the Western Cape

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WESTERN CAPE – Computer based ABET

WESTERN CAPE - Computer based ABETAs part of improving our workers’ skills, an Adult Based Education and Training (ABET) programme was launched in February 2010 with 12 workers (six from Care Craft Lansdowne and six workers from Care Craft Mitchells Plain) participating. The training took place three times per week, whereby the workers worked individually on their tasks and assignments. The fourth day was for consultation with the practical facilitator to discuss their progress and for assisting them with any further training needs. This training process was conducted over six months and completed in September 2010. We would like to congratulate all the workers who took part in this training.

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WESTERN CAPE – Election of Branch Board Office Bearers

An election was held at the Branch Board meeting on 29 September and the following members were elected into the following portfolios: Chairperson: Professor Roland Eastman Vice Chairperson: Mrs Esmé Kennel Treasurer: Mr Lindsay Kearns Vice Treasurer: Mr Malcolm Brown The Branch congratulates them on their elections, respectively. We also welcomed two new Board members to the meeting. Mrs Johannah Keikelame is a lecturer in health promotion at UCT and has researched and presented papers on matters pertaining to epilepsy management and stigma. Mr Charles America is a person with epilepsy and has been participating in our epilepsy seminars over the past few years.

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Visit our website or to contact any of our Branches or National Office.

September Newsletter 2010

In Uncategorized on October 7, 2010 at 2:38 pm
September 2010

Dear Valued Subscriber to the Epilepsy South Africa Newsletter


From the National Director’s desk

I greet you from a still-chilly Cape Town, despite it being spring already. Normally during the months of August and September, it is “AGM season” within the NPO sector. As you will read from this newsletter, many of our Branches have already successfully hosted their AGMs.

We also continue to implement many exciting programmes and fundraising initiatives. You will read about our extensive economic empowerment initiatives, creative community development programmes, research initiatives and many other programmes facilitated by our organisation. I want to thank the personnel members of Epilepsy SA for their commitment and their creativity in their work. I also want to thank each and every individual and company who support and who is involved with our organisation. We can’t survive without your help.

You will also note from the articles that we celebrated Casual Day on 3 September 2010. We truly hope that each South African reflected on disabilities with us on that day, by showing their support through buying and wearing their Casual Day sticker.

I wish each reader the best for the remainder of 2010 and hope to receive your input and feedback in the months to come.

Kindest regards,
Noëline de Goede

September E-news Contents:

Entrepreneurial development

Entrepreneurial development  
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Women’s Entrepreneurship Development (WED) capacity building
In celebration of Women’s month, Epilepsy SA hosted its first ever WED Programme in Cape Town during August 2010. The Capacity Building Seminar focused on women entrepreneurs with disabilities and was attended by 11 women and two men drawn from both the disability and commercial sectors.
The seminar programme created opportunities for participants to discover the gender elements inherent in entrepreneurship and skill them with new knowledge and techniques to advance the position of women entrepreneurs and especially those with disabilities.
The Programme content includes:
Gender and enterprise;
Markets and market access;
Business Development Services (BDS) for women entrepreneurs;
The enabling environment for WED;
Building associations and strategic alliances;
Gender issues and finance;
Assessing impact;
Action planning; and
Four supplementary sessions (HIV/AIDS and women entrepreneurs, Women refugees and entrepreneurship, Women’s entrepreneurship and trafficking and Entrepreneurship development for women with disabilities.)
We look forward to the roll-out of this programme by the 13 participants during the next six to twelve months.
This seminar also saw the official launch of Epilepsy South Africa’s Training Division. This division will offer disability sensitisation, entrepreneurship and soft skills training to the disability and non-profit sectors in addition to the corporate sector. Training/meeting facilities are also available at very reasonable prices.
For more information on the WED Programme, please contact Marina Clarke on (021) 595-4900 or economicdev.no@epilepsy.org.za.

The Social Enterprise (SE) Programme

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This is a new programme providing guidance for the establishment and development of social enterprises in South Africa. The programme consists of five tools:
An awareness raising workshop;
Generate Your Social Business Idea (GYSBI);
Generate Your Social Business Plan (GYSBP);
A rapid assessment tool for social enterprises; and
A rapid assessment tool for social entrepreneurs.
The piloting of this programme was linked to a social enterprise competition in the Eastern Cape and will also be rolled out in the Western Cape.
For more information about accessing and implementing this programme please contact Marina Clarke on (021) 595-4900 or economicdev.no@epilepsy.org.za.

Expand Your Business (EYB)

Expand Your Business (EYB)  
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The ILO WEDGE (Women Entrepreneurship Development and Gender Equality) Project hosted the first ever EYB Training of Trainers seminar in Pretoria at the end of August 2010. The EYB Programme aims to assist growth-oriented entrepreneurs to grow their businesses by:
Developing and implementing a strategic business growth strategy and
Strengthening the business and its core functions.
The seminar was attended by 14 trainers drawn mainly from the Western and Eastern Cape, Gauteng, KZN and Swaziland.
Epilepsy SA will be offering this programme to growth-oriented entrepreneurs focusing on the disability and non-profit sectors in addition to the private sector.
While the programme is flexible, training is usually conducted over five days followed by one-on-one individual counseling sessions with entrepreneurs.
For more information contact Marina Clarke on (021) 595-4900 or economicdev.no@epilepsy.org.za.

News from the Mpumalanga & Limpopo Branch

News from the Mpumalanga & Limpopo Branch  
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August must have been our busiest (and most exciting) month with our AGM that took place on 14 August 2010 and the annual Dinner Dance fundraising event held at Dunkeld Country Estate on 18 August 2010. Casual Day was celebrated on 3 September and proved to be a very enjoyable day! In the meantime, all the managers are hard at work completing the service plans and business plans that will be handed in to Department Social services by early September 2010.

Our AGM kicked off with a local schools’ choir – Hambanathi Primary, who performed three songs that was greatly enjoyed by all our guests. Our own residents had been practising their numbers and delivered beautiful percussion and singing items, thanks to the help of Lizette, one of our “Dullstroom friends” and member of the Helping Hands. We also had a guest speaker, Mike Rakubu who enlightened us with the report on research compiled by him regarding “The attitude of learners and educators in Secondary Schools.” We were also privileged to have Mr Du Toit Nkambule, from the Premier’s office, present and who very kindly spoke a few words on the subject of Disabilities and Government. He complimented all of us at Epilepsy SA Mpumalanga – Limpopo on the work we are doing. Our new Board was elected and we are proud to welcome Remember Maimela, also a disabled person, to our Management Board.

The annual Dinner Dance fundraiser was attended by 73 people this year and we had a new MC – Mark Bett, also the part-owner of Dullstroom’s Bird of Prey Centre. The evening was a great success with our local business owners contributing generously towards prizes. With the help of Mark, who did a wonderful job, and all our loyal supporters in town, we managed to raise R11,000.00 this year!

Please contact Riette or Elsa at the fundraising and marketing office with any queries on 013 2540161.

News from the South Cape/Karoo Branch

News from the South Cape/Karoo Branch  
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We planned a Street Parade for Casual Day and stickers were sold at three points in Knysna (at the local SPAR, Pick ‘n Pay and Woolworths) on 3 September 2010.

We are looking forward to Dr Potgieter visiting us from 6 to 17 September. Due to severe subsidy cuts for our Outreach programme, we had to scale down. We shall take them to Oudtshoorn in our own transport and requested the clinics in Beaufort West and Murraysburg to transport their most urgent cases per ambulance to Deysselsdorp. Check his programme for this period to find out when you can access this service:

6 – 17 SEPTEMBER 2010
Monday, 6 September:
8.30: Albertinia Clinic

Tuesday, 7 September:
8.30: Eyethu Clinic, Mossel Bay
12.00: Grootbrak Clinic

Wednesday, 8 September:
8.30: Sedgefield Clinic
13.00: Out-patients: EPILEPSY SA Knysna: Town, White Location, Flenter Location
Jood-se-Kamp, Concordia.

Thursday, 9 September:
8.30: New Horizons Clinic, Plettenberg Bay
13.00: The Crags Clinic

Friday, 10 September:
8.00: Out-patients: EPILEPSY SA: Rheenendal, Dam-se-Bos, Hornlee, Harkerville, Brackenhill, Diepwalle – further afield areas.

Monday, 13 September:
8.00: Bridgton Clinic

Thursday, 14 September:
8.00: Ladismith Clinic
12.30: Zoar Clinic

Wednesday, 15 September:
8.00: Bridgton Clinic: Oudtshoorn (Farms)
11.00: De Rust Clinic

Thursday, 16 September:
8.00: Dysselsdorp Day Hospital

Friday, 17 September:
8.00: Dysselsdorp Day Hospital – Out-patients from Beaufort West and Murraysburg (by ambulans)

Funds of the Group of Hope in The Crags were depleted and with no more grants forthcoming from the Department of Social Development, it could have serious repercussions for them.

By receiving funding from the M & R Letsema Siswe Fund, they could purchase an “office” container which serves as a kitchen at present, seven members had their eyes tested and six received their glasses. They have enough money now for food and craft materials and also to purchase a much needed sewing machine. They are currently manufacturing their African dolls and keep themselves busy with dominoes as seen on the photographs. They are most indebted to the DEC Trust for making this possible.

News from the Free State & North West Branch

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AGM notice

You are cordially invited to the Annual General Meeting of Epilepsy South Africa Free State and North West Branch on 28 September 2010 at 16:00 in the Recreation Hall of the residential care facility – 52 Boom Street, Parys, 9585. Please contact Yvonne Boucher at the Centre on (056) 811-5959 during office hours to let us know if you can attend.

Annual Golf Day

Epilepsy South Africa Free State and North West Branch is hosting our Annual Golf Day on 8 October 2010 on the Parys Golf and Country Estate. Entry is R800 per team of four players and sponsorships is available at R1,000 per hole. If you sponsor a hole you can enter a team at the reduced cost of R600. For more information and entry forms, contact Tertius Meyer on (056) 811-5959 or 082 328 1424.

News from the Western Cape Branch

News from the Western Cape Branch  
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Disability and Human Rights

Epilepsy South Africa Western Cape Branch has embarked on a research project aimed at exploring the knowledge and understanding of Disability and Human Rights amongst People with Disabilities. The premise behind this research is such that people with disabilities still experience violations of their basic human rights and that there exists a gap in their knowledge, understanding and the skills needed by people with disabilities to access their rights and seek redress for their violations.

During the month of August the process of data collection for the research project began and to date four focus groups in the areas of Crossroads, Masiphumelela, Mitchells Plain, Heideveld and Elsies River and one in-depth interview in the area of Masiphumelela have been completed. Further focus groups and individual interviews are planned for September. Once the data has been collected and analysed the information will be used to develop new learning materials such toolkits on disability and human rights for people with disabilities in order to bridge the gap of knowledge and understanding of disability rights and provide the skills and knowledge necessary to access rights and redress violations.

Branch AGM on 26 August 2010

Epilepsy South Africa Western Cape celebrated its 41st Annual General Meeting in the month of August with the theme of “from Exclusion to Equality …unlocking true potential”. This year we had renowned labour law specialist Michael Bagraim as a guest speaker on disability and labour law. He spoke on pertinent issues relating to labour law and held a question-and-answer session for the attendees. The talk was well received and attendees were able to have their burning questions relating to labour law asked and answered. The second speaker who is a member of our Branch Board , Mrs Bobbie Fitchen, mother of Kai, a young person with epilepsy who has successfully summated Mt Kilimanjaro in 2009 and again succeeded to summit the highest mount in Russia in July this year. The inspiring message that was shared was that a mountain is like epilepsy, you have to climb it one foot at a time. The day ended with an impromptu celebration dance from some of the workers which ended the AGM on an uplifting and energetic note.

Epilepsy Advocacy and Rights Based Conference in November 2010

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In our May Electronic Newsletter we marketed that Epilepsy South Africa National Office will be hosting a three day Epilepsy Advocacy and Rights Based Conference in August 2010 in Cape Town. The dates have been changed to 11-13 November 2010. The aim of the Epilepsy Advocacy and Rights Based Conference is to empower people with epilepsy, including youth with epilepsy. Participants will learn how to be self advocates, what civil rights entail and will be asked to voice their needs and challenges that they experience on a daily basis. It is time for adults and youth with epilepsy to reclaim their place. Highlighting their life stories, their needs and the discrimination and stigma they experience on a daily basis, will create awareness and understanding within South Africa. It is time that we stop being complacent, take control of our lives and do something positive about the issues affecting us.
If you want to make a difference by being an advocate, collaborate with other people with epilepsy and mobilise yourself as national adult and youth epilepsy forums: JOIN OUR EPILEPY ADVOCACY and RIGHTS BASED CONFERENCE.

For more information and bookings please contact us:
086 037 4537 or (021) 595 4900 or email socdev.no@epilepsy.org.za

Female Entrepreneur Award

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The following projects were nominated for the Female Entrepreneur Award Competition 2010, hosted by the Department of Agriculture and won under the following categories in Vredefort at NGWATHE.

Coptic Vegetable Project won in the category of a Small Holder Entrepreneur and won against 2 projects of Villiers and Sasolburg.

Basadi Kopanang Vegetable Project won as Best Subsistence Farmer against 2 projects from Villiers.

Soduke Chemicals won the awards of a Top Young Entrepreneur. Each project won a certificate, trophy and R7500.

On 7 August, the projects were entered into the Provincial Competition and won again. They were again awarded a certificate, trophy and money to expand their enterprises. Coptic Vegetable Project won R32,000, Basadi Kopanang Vegetable Project R25,000 and Soduke Chemicals R25,000. They are now finalists for the National Competition.

Coptic Vegetable Project started in 2008 with three women, but now they are four. Basadi Kopanang Vegetable Project started in 2009 with eight women, abut now they are four as well. Both these projects were started by Epilepsy SA out of funds received from the National Development Agency for a Food Security and Economic Development Project.

They were assisted with the provision of seedlings, veggi-tunnels and the money to buy ingredients for agro-processing. Epilepsy SA helps with training and assists with the marketing of the produce through Epilepsy SA’s Dome Business Hub. The Department of Agriculture has played a vital role to the project by providing training on vegetable production, agro-processing, as well as offering technical advice.

The Soduke Chemicals started in 2008 with six young women and one man. They specialise in the manufacturing of cleaning detergents like Jik, Bath Foam, Handy Andy and Pine Gel. Their target market is local schools, hospitals, the community and the mortuary.

Visit our website or to contact any of our Branches or National Office.

EPILEPSY SOUTH AFRICA National Office, Cape Town

Tel: (021) 595-4900
(international +27215954900)
Fax: (021) 595-4901 (international +27215954901)

Physical address:
Ground Floor
Syfin House
Fairway Close
Postal address:
PO Box 12100
N1 City
South Cape/Karoo

PO Box 107
Tel: (044) 382-2155

Western Cape

PO Box 24573,
Tel: (021) 703-9420

Mpumalanga / Limpopo

PO Box 55,
Tel: (013) 254-0161/2/3

Gauteng Branch
Regional office

PO Box 1070
Tel: (011) 816-2040/57

Free State & North West

PO Box 167
Tel: (056) 811-5959

Kwa Zulu Natal Midlands

PO Box 2165
Tel: (033) 394-1041/8

PLEASE CONTACT 0860 EPILEPSY (0860 374537)

This is the electronic newsletter of Epilepsy South Africa, compiled by the National

Women’s Entrepreneurial Development Programme

In Uncategorized on October 7, 2010 at 1:45 pm

Nicole Flint, Miss SA 2009, supports Epilepsy South Africa and their latest initiative, the Women’s Entrepreneurial Development Programme.

The Women’s Entrepreneurial Development Programme was rlaunched by Epilepsy South Africa at their National Office, and was well attended by woman who believes in their empowerment in the business environment.

Miss SA supports Epilepsy South Africa

In Uncategorized on October 7, 2010 at 1:43 pm

Nicole Flint, Miss SA 2009, shows her support for Epilepsy South Africa in the following video, please have a look.


Join us for an evening of fun, five star cuisine, celebrity appearances, sterling entertainment and the best wines South Africa has to offer!

In Uncategorized on October 4, 2010 at 11:28 am

Epilepsy South Africa is hosting its 4th Annual National Wine Auction on 28 October 2010. We are proud to introduce our main sponsor, Cipla Medpro, as our partner for this event.

The Wine Auction has grown in stature every year and the 2010 auction promises to top it all! We are back this year in the luxurious Westin Grand Hotel in Cape Town and we know that with their five star cuisine, top wines of South Africa and fantastic entertainment, this will surely be a night to remember.

Mr Paul Buckby will be our MC. He is a celebrated SA television actor, singer, television presenter and auctioneer best known for his role as Dr Adam Fischer on the M-Net soap opera Egoli: Place of Gold. He has appeared in a number of television shows, ranging from TV presenting to acting and was the master of Ceremonies at two Miss South Africa pageants.

Entertainment will be a feast to the ears as we enjoy the smooth jazz sounds and a range of enjoyable popular background music by Urban Groove during arrival and wine tasting.

Sterling EQ will dazzle us with their genre-defying musical style and sensational live performance. Sterling EQ has proved to be one of the most successful instrumental bands ever to come out of South Africa and have performed on the stages of coveted events such as the South African Music Awards (SAMA’s), the opening of Cape Town stadium, FIFA Final Draw party in Long Street, and IPL Cricket Tournament opening. They’ve shared stages with icons such as Boney M, Snow Patrol, Johnny Clegg, Parlotones and Soweto Gospel Choir, and have entertained local and international celebrities to the likes of Elton John, Annie Lennox, and Lance Armstrong, to name but a few.

Apart from the special programme and the five course dinner, there is the added excitement of special items up for auction. Rare, older vintages, selected art, and sports memorabilia will fall under the hammer of Auction Alliance, while lucky draws and prizes will further kindle the entertaining atmosphere.

The Wine Auction 2010 will surely be the place to be, but it will be even more so if you decide to join us for this glamorous evening.

For more information and how you can participate, contact:
Wynand du Toit, National Office Fundraiser – Epilepsy South Africa
Tel: 021 595 4900 ↔ Mobile: 084 479 3110

The ACSA Expo

In Uncategorized on September 14, 2010 at 11:42 am

The ACSA Lifestyle Expo focuses on the empowerment of people with disabilities. Epilepsy South Africa will showcase their services at the exhibition to inform the public that there is help for people with epilepsy.