September Newsletter 2010

In Uncategorized on October 7, 2010 at 2:38 pm
September 2010

Dear Valued Subscriber to the Epilepsy South Africa Newsletter


From the National Director’s desk

I greet you from a still-chilly Cape Town, despite it being spring already. Normally during the months of August and September, it is “AGM season” within the NPO sector. As you will read from this newsletter, many of our Branches have already successfully hosted their AGMs.

We also continue to implement many exciting programmes and fundraising initiatives. You will read about our extensive economic empowerment initiatives, creative community development programmes, research initiatives and many other programmes facilitated by our organisation. I want to thank the personnel members of Epilepsy SA for their commitment and their creativity in their work. I also want to thank each and every individual and company who support and who is involved with our organisation. We can’t survive without your help.

You will also note from the articles that we celebrated Casual Day on 3 September 2010. We truly hope that each South African reflected on disabilities with us on that day, by showing their support through buying and wearing their Casual Day sticker.

I wish each reader the best for the remainder of 2010 and hope to receive your input and feedback in the months to come.

Kindest regards,
Noëline de Goede

September E-news Contents:

Entrepreneurial development

Entrepreneurial development  
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Women’s Entrepreneurship Development (WED) capacity building
In celebration of Women’s month, Epilepsy SA hosted its first ever WED Programme in Cape Town during August 2010. The Capacity Building Seminar focused on women entrepreneurs with disabilities and was attended by 11 women and two men drawn from both the disability and commercial sectors.
The seminar programme created opportunities for participants to discover the gender elements inherent in entrepreneurship and skill them with new knowledge and techniques to advance the position of women entrepreneurs and especially those with disabilities.
The Programme content includes:
Gender and enterprise;
Markets and market access;
Business Development Services (BDS) for women entrepreneurs;
The enabling environment for WED;
Building associations and strategic alliances;
Gender issues and finance;
Assessing impact;
Action planning; and
Four supplementary sessions (HIV/AIDS and women entrepreneurs, Women refugees and entrepreneurship, Women’s entrepreneurship and trafficking and Entrepreneurship development for women with disabilities.)
We look forward to the roll-out of this programme by the 13 participants during the next six to twelve months.
This seminar also saw the official launch of Epilepsy South Africa’s Training Division. This division will offer disability sensitisation, entrepreneurship and soft skills training to the disability and non-profit sectors in addition to the corporate sector. Training/meeting facilities are also available at very reasonable prices.
For more information on the WED Programme, please contact Marina Clarke on (021) 595-4900 or economicdev.no@epilepsy.org.za.

The Social Enterprise (SE) Programme

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This is a new programme providing guidance for the establishment and development of social enterprises in South Africa. The programme consists of five tools:
An awareness raising workshop;
Generate Your Social Business Idea (GYSBI);
Generate Your Social Business Plan (GYSBP);
A rapid assessment tool for social enterprises; and
A rapid assessment tool for social entrepreneurs.
The piloting of this programme was linked to a social enterprise competition in the Eastern Cape and will also be rolled out in the Western Cape.
For more information about accessing and implementing this programme please contact Marina Clarke on (021) 595-4900 or economicdev.no@epilepsy.org.za.

Expand Your Business (EYB)

Expand Your Business (EYB)  
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The ILO WEDGE (Women Entrepreneurship Development and Gender Equality) Project hosted the first ever EYB Training of Trainers seminar in Pretoria at the end of August 2010. The EYB Programme aims to assist growth-oriented entrepreneurs to grow their businesses by:
Developing and implementing a strategic business growth strategy and
Strengthening the business and its core functions.
The seminar was attended by 14 trainers drawn mainly from the Western and Eastern Cape, Gauteng, KZN and Swaziland.
Epilepsy SA will be offering this programme to growth-oriented entrepreneurs focusing on the disability and non-profit sectors in addition to the private sector.
While the programme is flexible, training is usually conducted over five days followed by one-on-one individual counseling sessions with entrepreneurs.
For more information contact Marina Clarke on (021) 595-4900 or economicdev.no@epilepsy.org.za.

News from the Mpumalanga & Limpopo Branch

News from the Mpumalanga & Limpopo Branch  
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August must have been our busiest (and most exciting) month with our AGM that took place on 14 August 2010 and the annual Dinner Dance fundraising event held at Dunkeld Country Estate on 18 August 2010. Casual Day was celebrated on 3 September and proved to be a very enjoyable day! In the meantime, all the managers are hard at work completing the service plans and business plans that will be handed in to Department Social services by early September 2010.

Our AGM kicked off with a local schools’ choir – Hambanathi Primary, who performed three songs that was greatly enjoyed by all our guests. Our own residents had been practising their numbers and delivered beautiful percussion and singing items, thanks to the help of Lizette, one of our “Dullstroom friends” and member of the Helping Hands. We also had a guest speaker, Mike Rakubu who enlightened us with the report on research compiled by him regarding “The attitude of learners and educators in Secondary Schools.” We were also privileged to have Mr Du Toit Nkambule, from the Premier’s office, present and who very kindly spoke a few words on the subject of Disabilities and Government. He complimented all of us at Epilepsy SA Mpumalanga – Limpopo on the work we are doing. Our new Board was elected and we are proud to welcome Remember Maimela, also a disabled person, to our Management Board.

The annual Dinner Dance fundraiser was attended by 73 people this year and we had a new MC – Mark Bett, also the part-owner of Dullstroom’s Bird of Prey Centre. The evening was a great success with our local business owners contributing generously towards prizes. With the help of Mark, who did a wonderful job, and all our loyal supporters in town, we managed to raise R11,000.00 this year!

Please contact Riette or Elsa at the fundraising and marketing office with any queries on 013 2540161.

News from the South Cape/Karoo Branch

News from the South Cape/Karoo Branch  
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We planned a Street Parade for Casual Day and stickers were sold at three points in Knysna (at the local SPAR, Pick ‘n Pay and Woolworths) on 3 September 2010.

We are looking forward to Dr Potgieter visiting us from 6 to 17 September. Due to severe subsidy cuts for our Outreach programme, we had to scale down. We shall take them to Oudtshoorn in our own transport and requested the clinics in Beaufort West and Murraysburg to transport their most urgent cases per ambulance to Deysselsdorp. Check his programme for this period to find out when you can access this service:

6 – 17 SEPTEMBER 2010
Monday, 6 September:
8.30: Albertinia Clinic

Tuesday, 7 September:
8.30: Eyethu Clinic, Mossel Bay
12.00: Grootbrak Clinic

Wednesday, 8 September:
8.30: Sedgefield Clinic
13.00: Out-patients: EPILEPSY SA Knysna: Town, White Location, Flenter Location
Jood-se-Kamp, Concordia.

Thursday, 9 September:
8.30: New Horizons Clinic, Plettenberg Bay
13.00: The Crags Clinic

Friday, 10 September:
8.00: Out-patients: EPILEPSY SA: Rheenendal, Dam-se-Bos, Hornlee, Harkerville, Brackenhill, Diepwalle – further afield areas.

Monday, 13 September:
8.00: Bridgton Clinic

Thursday, 14 September:
8.00: Ladismith Clinic
12.30: Zoar Clinic

Wednesday, 15 September:
8.00: Bridgton Clinic: Oudtshoorn (Farms)
11.00: De Rust Clinic

Thursday, 16 September:
8.00: Dysselsdorp Day Hospital

Friday, 17 September:
8.00: Dysselsdorp Day Hospital – Out-patients from Beaufort West and Murraysburg (by ambulans)

Funds of the Group of Hope in The Crags were depleted and with no more grants forthcoming from the Department of Social Development, it could have serious repercussions for them.

By receiving funding from the M & R Letsema Siswe Fund, they could purchase an “office” container which serves as a kitchen at present, seven members had their eyes tested and six received their glasses. They have enough money now for food and craft materials and also to purchase a much needed sewing machine. They are currently manufacturing their African dolls and keep themselves busy with dominoes as seen on the photographs. They are most indebted to the DEC Trust for making this possible.

News from the Free State & North West Branch

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AGM notice

You are cordially invited to the Annual General Meeting of Epilepsy South Africa Free State and North West Branch on 28 September 2010 at 16:00 in the Recreation Hall of the residential care facility – 52 Boom Street, Parys, 9585. Please contact Yvonne Boucher at the Centre on (056) 811-5959 during office hours to let us know if you can attend.

Annual Golf Day

Epilepsy South Africa Free State and North West Branch is hosting our Annual Golf Day on 8 October 2010 on the Parys Golf and Country Estate. Entry is R800 per team of four players and sponsorships is available at R1,000 per hole. If you sponsor a hole you can enter a team at the reduced cost of R600. For more information and entry forms, contact Tertius Meyer on (056) 811-5959 or 082 328 1424.

News from the Western Cape Branch

News from the Western Cape Branch  
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Disability and Human Rights

Epilepsy South Africa Western Cape Branch has embarked on a research project aimed at exploring the knowledge and understanding of Disability and Human Rights amongst People with Disabilities. The premise behind this research is such that people with disabilities still experience violations of their basic human rights and that there exists a gap in their knowledge, understanding and the skills needed by people with disabilities to access their rights and seek redress for their violations.

During the month of August the process of data collection for the research project began and to date four focus groups in the areas of Crossroads, Masiphumelela, Mitchells Plain, Heideveld and Elsies River and one in-depth interview in the area of Masiphumelela have been completed. Further focus groups and individual interviews are planned for September. Once the data has been collected and analysed the information will be used to develop new learning materials such toolkits on disability and human rights for people with disabilities in order to bridge the gap of knowledge and understanding of disability rights and provide the skills and knowledge necessary to access rights and redress violations.

Branch AGM on 26 August 2010

Epilepsy South Africa Western Cape celebrated its 41st Annual General Meeting in the month of August with the theme of “from Exclusion to Equality …unlocking true potential”. This year we had renowned labour law specialist Michael Bagraim as a guest speaker on disability and labour law. He spoke on pertinent issues relating to labour law and held a question-and-answer session for the attendees. The talk was well received and attendees were able to have their burning questions relating to labour law asked and answered. The second speaker who is a member of our Branch Board , Mrs Bobbie Fitchen, mother of Kai, a young person with epilepsy who has successfully summated Mt Kilimanjaro in 2009 and again succeeded to summit the highest mount in Russia in July this year. The inspiring message that was shared was that a mountain is like epilepsy, you have to climb it one foot at a time. The day ended with an impromptu celebration dance from some of the workers which ended the AGM on an uplifting and energetic note.

Epilepsy Advocacy and Rights Based Conference in November 2010

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In our May Electronic Newsletter we marketed that Epilepsy South Africa National Office will be hosting a three day Epilepsy Advocacy and Rights Based Conference in August 2010 in Cape Town. The dates have been changed to 11-13 November 2010. The aim of the Epilepsy Advocacy and Rights Based Conference is to empower people with epilepsy, including youth with epilepsy. Participants will learn how to be self advocates, what civil rights entail and will be asked to voice their needs and challenges that they experience on a daily basis. It is time for adults and youth with epilepsy to reclaim their place. Highlighting their life stories, their needs and the discrimination and stigma they experience on a daily basis, will create awareness and understanding within South Africa. It is time that we stop being complacent, take control of our lives and do something positive about the issues affecting us.
If you want to make a difference by being an advocate, collaborate with other people with epilepsy and mobilise yourself as national adult and youth epilepsy forums: JOIN OUR EPILEPY ADVOCACY and RIGHTS BASED CONFERENCE.

For more information and bookings please contact us:
086 037 4537 or (021) 595 4900 or email socdev.no@epilepsy.org.za

Female Entrepreneur Award

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The following projects were nominated for the Female Entrepreneur Award Competition 2010, hosted by the Department of Agriculture and won under the following categories in Vredefort at NGWATHE.

Coptic Vegetable Project won in the category of a Small Holder Entrepreneur and won against 2 projects of Villiers and Sasolburg.

Basadi Kopanang Vegetable Project won as Best Subsistence Farmer against 2 projects from Villiers.

Soduke Chemicals won the awards of a Top Young Entrepreneur. Each project won a certificate, trophy and R7500.

On 7 August, the projects were entered into the Provincial Competition and won again. They were again awarded a certificate, trophy and money to expand their enterprises. Coptic Vegetable Project won R32,000, Basadi Kopanang Vegetable Project R25,000 and Soduke Chemicals R25,000. They are now finalists for the National Competition.

Coptic Vegetable Project started in 2008 with three women, but now they are four. Basadi Kopanang Vegetable Project started in 2009 with eight women, abut now they are four as well. Both these projects were started by Epilepsy SA out of funds received from the National Development Agency for a Food Security and Economic Development Project.

They were assisted with the provision of seedlings, veggi-tunnels and the money to buy ingredients for agro-processing. Epilepsy SA helps with training and assists with the marketing of the produce through Epilepsy SA’s Dome Business Hub. The Department of Agriculture has played a vital role to the project by providing training on vegetable production, agro-processing, as well as offering technical advice.

The Soduke Chemicals started in 2008 with six young women and one man. They specialise in the manufacturing of cleaning detergents like Jik, Bath Foam, Handy Andy and Pine Gel. Their target market is local schools, hospitals, the community and the mortuary.

Visit our website or to contact any of our Branches or National Office.

EPILEPSY SOUTH AFRICA National Office, Cape Town

Tel: (021) 595-4900
(international +27215954900)
Fax: (021) 595-4901 (international +27215954901)

Physical address:
Ground Floor
Syfin House
Fairway Close
Postal address:
PO Box 12100
N1 City
South Cape/Karoo

PO Box 107
Tel: (044) 382-2155

Western Cape

PO Box 24573,
Tel: (021) 703-9420

Mpumalanga / Limpopo

PO Box 55,
Tel: (013) 254-0161/2/3

Gauteng Branch
Regional office

PO Box 1070
Tel: (011) 816-2040/57

Free State & North West

PO Box 167
Tel: (056) 811-5959

Kwa Zulu Natal Midlands

PO Box 2165
Tel: (033) 394-1041/8

PLEASE CONTACT 0860 EPILEPSY (0860 374537)

This is the electronic newsletter of Epilepsy South Africa, compiled by the National


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